The Mark Shaparin Foundation leads educational initiatives for healthcare providers and families across the country to increase knowledge about Sudden Unexpected Death in Epilepsy (SUDEP). Their focus is on raising awareness about risk factors and preventative measures and creating a robust national dialogue about SUDEP in and out of the medical community. Through these initiatives, the goal of the foundation is to reduce the incidence of these devastating deaths — currently at approximately 1 in 1,000. 

SUDEP is not routinely taught in medical school or other medical training programs, making it especially dangerous. For medical providers with knowledge of SUDEP, many do not discuss it with their patients for fear of alarming them and their families. The Mark Shaparin Foundation’s focus on educating providers, patients, and the public about SUDEP distinguishes it as an essential nonprofit organization in the epilepsy and seizure disorder community.

Through educational initiatives, events, and fundraisers, The Mark Shaparin Foundation commemorates Mark’s extraordinary life and passions. At the heart of every program organized by the foundation are the love and joy that Mark brought to his family and everyone he knew.